Category: News

We are grateful to all the members of APS Type 1 Foundation for their continuous support and advice. We thank APS Type 1 Foundation’s families for their hard work to raise funds to support APS-1 research. Rachid Tazi-Ahnini and Mimoun Azzouz In 2019, the Foundation’s research grant was awarded to Rachid Tazi-Ahnini and Mimoun Azzouz…

Many in our APS type 1 community are affected by hypoparathyroidism. On March 5th, Julia Richardson joined about a dozen other patients, to share the impact of hypoparathyroidism and treatment at an Externally Led Patient Focused Drug Development (EL-PFDD) meeting. The goal of the meeting was to share the effects of the disease and the…

Welcome to 2024, we hope that you and your family have kicked off the new year with good health and happiness!   Our spring newsletter will highlight some of the amazing activities of our community already this year and provide you with a look at what we are focused on for 2024.  Make sure you read about…

We are thrilled to announce that The APS 1 Foundation is partnering with the Clinical Immunology Society and National Institute of Allergy and Infectious Diseases (NIAID)  to hold a symposium at this June’s FOCIS conference in San Francisco. FOCIS will bring together leading clinicians and researchers delivering the latest breakthroughs across immunology. It is a key meeting for translational immunology. The title of the…

By Nick Paul Taylor AstraZeneca is paying $800 million to expand into rare endocrinology, snagging itself a phase 3 candidate through the acquisition of French biotech Amolyt Pharma. The deal features $250 million in milestones tied to a regulatory event. Buying Amolyt will give AstraZeneca control of eneboparatide, a PTHR1 agonist that the biotech moved into phase 3 in June….

On February 29th, please join us in raising awareness about APS Type 1 as we celebrate the Rare Disease Day! Post messages, photos, videos, or whatever you think best shares your story on social media and add the hashtag #APS1WeAreRare. February 29th is the International Rare Disease Day. This day is dedicated to raising awareness and generating change for the 300…

We’ve earned our Gold Seal of Transparency with Candid. Get updates on our impact through our #NonprofitProfile https://www.guidestar.org/profile/32-0241819

With a lofty goal of $25,000, the Foundation initiated an email campaign in early November, asking members of the community to activate their networks in giving. The idea behind this approach was to expand our reach and get all families invested in our common mission. Email templates were provided to make the process as easy…