Since 2015, the APS Type 1 Foundation has supported an international symposium on this rare disease every two years. Our symposium brings together families, clinicians, and scientists from around the world to discuss the latest developments in research and management of APS Type 1. In 2015, over 30 families attended as leaders to share their knowledge with physicians. We are proud to run a world class conference with many of North America and Europe’s leading doctors. Since then, we’ve been growing rapidly and in 2023, approximately 150 people, including patients, families, caregivers, researchers, clinicians and others.
Our 6th International Symposium on APS Type 1 will take place in 2025.
We were proud to host our 5th International Symposium on APS Type 1 in Washington D.C. in July 2023. Please click links below for video recording, PPT slides and program.
We were pleased to host a virtual symposium in 2021 as we continued to manage our health during the Covid-19 pandemic. Videos from our virtual event can be accessed here.
We were very proud to host our 3rd International Symposium on APS Type 1 as a part of the Immune Deficiency Foundation’s (IDF) Annual Conference in National Harbor, Maryland, USA. In addition to presentations on the latest findings from the NIH’s natural history study, we held presentations on the challenges of puberty in APS Type 1 and managing adrenal insufficiency and hypoparathyroidism in emergencies and for planned procedures. Our group also benefitted from the presentations at the larger IDF conference.
We had an incredible Symposium in 2017 in Stony Brook, New York, USA. Hosted by Sherri and David Seyfert, along with their family and friends, we enjoyed world-class presentations at the beautiful facilities at Stony Brook University. Highlights included talks on eye care, malabsorption, the role of the thymus in APS Type 1, and connecting APS Type 1 research to other diseases, such as Type 1 Diabetes.
The 1st International Symposium on APS Type 1 was held at SickKids Hospital in Toronto, Canada. Over 20 families joined with speakers from across the U.S., Canada and Europe. Highlights included a problem-solving panel discussing the challenges that occur in managing endocrine symptoms combined with malabsorption, autoimmune hepatitis in APS Type 1, the biology and immunology of AIRE, and growing up with APS Type 1.