Beginning in 2015, the APS Type 1 Foundation has supported a symposium on this rare disease every two years. The symposia bring together families, clinicians, and scientists from around the world to discuss the latest developments in research and management of APS Type 1.

Over 30 families have attended as leaders to share their knowledge with physicians. We are proud to run a world class conference with many of North America and Europe’s leading doctors. We hope many more families will join in the future.

Join us on September 18, 2021, for the 4th International Symposium on APS Type 1

We are pleased to share with you that we are hosting the 4th International Symposium on APS Type 1 on Saturday, September 18, 2021, 12:00 pm – 4:00 pm EDT. It’s a VIRTUAL event. Click here to register.

The APS Type 1 Foundation gratefully acknowledges support from SickKids Hospital & Julia’s Fund at the SickKids Foundation.


Each presentation will be 30 minutes, followed by 15 minutes Q&A

12:00-12:05 Introductions (Jennifer Orange, The APS Type 1 Foundation & Irene Lara-Corrales, SickKids)

12:05-12:50 Paul Bastard (Necker Hospital and Rockefeller University), Autoantibodies against type I IFNs in patients with APS-1

12:50-1:35 Mihalis Lionakis (NIH), Clinical management of COVID-19 and vaccination responses to SARS-CoV-2 in APS-1/APECED patients

1:35-1:45 Health Break

1:45-2:30 Sara Vazquez (UCSF), Discovery of novel, clinically correlated autoantibodies in APS-1 by high-throughput PhIP-Seq

2:30-3:30 Maureen Su (UCLA), AIRE & Cancer

3:30-3:55 Breakout Rooms

  • Newly diagnosed patients of APS Type 1
  • Managing Calcium and Adrenal Insufficiency (Dr. Cheri Deal – Université de Montréal and CHU Ste-Justine)
  • Clinicians/Scientists Meet and Greet
  • Children/Youth Meet and Greet

3:55-4:00 Closing and Thank Yous

APS Type 1 Friends and Family at our 2019 Symposium in National Harbor, Maryland

Past Events

We were very proud to host our 3rd International Symposium on APS Type 1 as a part of the Immune Deficiency Foundation’s (IDF) Annual Conference in National Harbor, Maryland, USA. In addition to presentations on the latest findings from the NIH’s natural history study, we held presentations on the challenges of puberty in APS Type 1 and managing adrenal insufficiency and hypoparathyroidism in emergencies and for planned procedures. Our group also benefitted from the presentations at the larger IDF conference.

We had an incredible Symposium in 2017 in Stony Brook, New York, USA. Hosted by Sherri and David Seyfert, along with their family and friends, we enjoyed world-class presentations at the beautiful facilities at Stony Brook University. Highlights included talks on eye care, malabsorption, the role of the thymus in APS Type 1, and connecting APS Type 1 research to other diseases, such as Type 1 Diabetes.

The 1st International Symposium on APS Type 1 was held at SickKids Hospital in Toronto, Canada. Over 20 families joined with speakers from across the U.S., Canada and Europe. Highlights included a problem-solving panel discussing the challenges that occur in managing endocrine symptoms combined with malabsorption, autoimmune hepatitis in APS Type 1, the biology and immunology of AIRE, and growing up with APS Type 1.