COVID-19: Todd Shares Updated Information from IDF

 APS Type 1 Family and Friends, As we complete our first week at home of what looks to be a long Spring ahead, we hope you have settled into your new normal and that you are all safe, healthy, and surrounded by loved ones. The news continues to provide important information around how you can…

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Lessons from the NORD Summit

Lessons from the NORD Summit

Jennifer Orange, October 2019 In late October, I travelled to Washington DC to attend the National Organization for Rare Disorders Summit. For me the Summit had three parts. I spent Sunday, October 20 with a group of inspiring leaders of rare disease organizations in a session designed to facilitate organizational development. It was remarkable how…

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Gaby’s Story

Gaby’s Story

This is our story about Gaby’s 6 years of missed diagnosis, and how you can prevent this from happening.

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