President and Chair of the Board

Todd S. Talarico, the Foundation’s President, Chair of the Board and Co-Founder, works in the pharmaceutical industry, focused on product and patient market access. Todd holds a BS from Bloomsburg University, PA, and a MS in Healthcare Management from the College of Saint Elizabeth, NJ. Since his daughter was diagnosed with APS Type 1 in 2006, Todd has worked tirelessly to develop the Foundation by raising awareness of the disease, working with the NIH and fundraising for research.

Jennifer Orange

Vice-President and Board Member

Jennifer Orange, the mother of a fabulous girl with APS Type 1/APECED, is Vice-President and Member of the Board. She was the Co-director of the First International Symposium on APS Type 1 in 2015 in Toronto and has developed the program for each symposium. She is passionate about advancing research in APS Type 1 and together with her family and friends she has raised over $100,000 for APS Type 1 research. A law professor and human rights adjudicator with a doctorate in law from the University of Toronto, she has also served on the Board of Patients Canada and the Gerstein Crisis Centre.


Treasurer and Board Member

Sherri Seyfert, Treasurer and Co-Founder of the APS Type 1 Foundation, Inc., is the mother of two exceptional boys, Matthew (APS Type 1) and Jonathan. Sherri holds a BS from Stony Brook University and is a Licensed Physical Therapist. Through her persistent efforts the foundation obtained its 501(c)(3) nonprofit status in 2014. In 2017, the Seyfert family hosted the 2nd International APS Type 1 Symposium at Stony Brook, NY.


Secretary and Board Member

Robin Finch is a Board member and Secretary of the Foundation and the mother of twelve year-old, Samantha, with APS Type 1/APECED. Robin fundraises for the foundation through her family’s “Slam Dunks for Sam” community basketball events.  She spearheaded the creation of our registry and hopes to develop a bio-bank. Robin practices real estate law at Greenberg Glusker in Los Angeles, California, and holds a JD from UC Davis.


Board Member

Heather T. Talarico, a Board Member and Co-Founder of the APS Type 1 Foundation, is a Commercial Claims Specialist. Her involvement since the diagnosis of her daughter has included establishing the APS Type 1 Research Grant Program through NORD, and coordinating fundraising events, which have supported seven research grant programs with NORD. Heather and Todd were the recipients of the NORD Distinguished Family Award in 2009.


Board Member

David Seyfert, is the father of Matthew, an Eagle Scout who is matriculating at Stony Brook University. Matt was diagnosed with APS Type 1 at age 6. David holds masters degrees in Special Education and Orientation and Mobility and has worked with students with visual impairments for over 35 years. David and his wife, Sherri, ran the APS Type 1 Basket raffle to raise money for research for 10 years.