A number of families have hosted fundraisers tailored to their families and friends. The APS Type 1 Foundation has created tools to help our families and friends host a fundraising dinner through our Serving Awareness Campaign. We also offering other amazing examples below.

Please contact us at info@apstype1.org if you are looking for ideas or support for your event.

Host a Serving Awareness Event

Who say rare disease isn’t dinner talk? We’ve created a simple, easy-to-follow plan to both raise awareness about APS Type 1 and raise desperately needed funds. The concept is simple. Invite a few people over for dinner and ask them to donate the amount they would have spent on dinner out. The dinner can be a grand event or small and casual. We would love it if you invited people to dinner who have never heard of APS Type 1 as part of our mission to make people aware of this rare disease. Use the time to catch up with friends and neighbors you “rarely” see! Then invite your guests to become a host of their own dinner party! We can all spread awareness. If you’d like to be a host, we have downloadable dinner kit items to make your party fun and educational!

Driving for a Cure Golf Outing

The Driving For A Cure Golf Outing ran for 10 straight years! This event was established by the Talarico Family to support early fundraising with NORD in 2006 and then supported the APS Type 1 Foundation after 2014. It grew year over year to be one of the largest events in the Berk’s County, PA area with 144 golfers and other family and friends attending annually.   With the help of corporate sponsors, and generous donations to our tricky tray and live auction event immediately following the outing, the DFAC Golf Outing generated $30,000 in net funding annually that was sent directly to NORD in support of the APS Type 1 Research Grant Program.

Gaby and Heather Talarico with friends at Driving for a Cure

Luck of the Irish Open House

The Luck of the Irish APS Type 1 Open House Event coincided with the Morristown, New Jersey’s 2019 St Patrick’s Day Parade. It gave local families and friends on opportunity to learn about APS Type 1 through flyers and promotional materials while they enjoyed great Irish food and a talented musician. This one day event raised $7,000 that went towards the 2020 $100,000 research grant.  

Prim’s Path

Primrose Powers was diagnosed APS Type 1 in 2018 at the age of 6 years old. The Powers family decided to have an end of summer open house to raise money to support Prim’s journey on “Prim’s Path.” It was a no brainer to pitch the idea to the APS Type 1 Foundation, who gave all that we needed to pull off a successful event this year. Primrose is thriving at school, is involved in Girl Scouts, plays club soccer, basketball and piano with an ultimate love for art. She even helped design her “Prim’s Path” logo. APS Type 1 doesn’t define her, it’s her “new normal” and she knows that whatever comes her way, we’ll deal with it just like any other bump in the road. Thank you to the APS Type 1 Foundation for being so supportive. It is so comforting to have such a wonderful community to lean on, and we hope with our fundraising efforts for the Foundation, we can help others get to a diagnosis quicker and find the support they need. 

Slam Dunks for Sam

The Finch Family has hosted two amazing events to support their daughter, Samantha and the APS Type 1 Foundation. Leveraging their family’s love of basketball, they organized “Slam Dunks for Sam” fundraisers in 2016 and 2017, which included fun basketball contests, a photo booth, balloon art, food carts, a silent auction, and just plain fun at our local high school gym. Through these events, the Finch Family has raised over $80,000 for the Foundation, which in turn enabled the Foundation to support a critical $100,000 research grant, the Second International Symposium on APS Type 1, and our rare disease registry.  To follow Samantha’s journey, we invite you to visit Samantha’s website, www.Samanthas-Something.org.

Dining for Julia’s Fund

Before meeting their American counterparts in the APS Type 1 Foundation, the Band Orange Family started funding to support research in APS Type 1. Inspired by their daughter Julia’s journey find a correct diagnosis and improved management for APS Type 1, the family asked their family and friends to each host a small dinner party and ask their guests to donate what they would have spent on a dinner out to Julia’s Fund at the SickKids Foundation in Toronto, Canada. The results were overwhelming. Over two dozen dinners were held all of the world raising over $100,000. This money supported the First International Symposium on APS Type 1 and research on the disease. These dinners are the inspiration for the Serving Awareness Campaign.

A Dining for Julia’s Fund Event in Tokyo!

Seyfert Family Basket Raffles

Jonathan Seyfert Getting the Baskets Ready!

For many, many years, the Seyfert Family raised money to fund APS Type 1 research grants by hosting annual basket raffles in their local community. Often the events were held at a nearby fire station. They always brought the community together to bid on all different sorts of gift baskets. In doing so, the Seyfert Family also raised the profile of our rare disorder. Through their consistent dedication to our community, the Seyfert Family teamed up with the Talarico Family to create a formal charitable foundation to increase awareness and help their fundraising efforts.