We are deeply grateful for the incredible generosity shown this Giving Tuesday, with over 60 individuals coming together to make a meaningful impact through their contributions. Giving Tuesday may have passed, but there’s still time to participate in the giving season. You might be thinking, “I have no idea what to do.” Don’t worry—you’re in…
Read MoreThe APS Type 1 Foundation unites and empowers a global community to drive awareness, education, and groundbreaking research for APS Type 1, transforming lives affected by this rare autoimmune disorder.
Join The APS Type 1 (APECED) Registry
NEW! Please help us grow the registry with our new brochure. Share it with your care team.
The APS Type 1 (APECED) Registry is a secure database that provides a way to collect information from many different people with APS Type 1 and to update information over time as conditions and experiences change. The surveys are intended to gather information about many different aspects of APS Type 1, including details about diagnosis, prognosis, treatments, which disorders the patient has and when they were acquired, medications, hospitalizations and quality of life. Help us drive research!
Upcoming Events
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RARE DISEASE DAY 2025: FRIDAY, FEBRUARY 28
APS Type 1 is considered a “rare disease” because it affects fewer than 1 in 2,000 people. However, with over 6,000 conditions meeting this definition,…
Friday, February 28, 2025 Worldwide and Online -
SAVE THE DATE: 6TH INTERNATIONAL SYMPOSIUM ON APS TYPE 1, JULY 10-12, 2025|SAN FRANSISCO, CALIFORNIA
We are thrilled to announce that the 6th International Symposium on APS Type 1 will take place on July 10–12, 2025, in the vibrant city…
Thursday, July 10, 2025 – Saturday, July 12, 2025 TBA
San Fransisco, California
How We Help
We connect patients, families and doctors, support the work of scientists, and drive research forward.
Stay Informed
The APS Type 1 Foundation brings the most up to date research to our community. Join our symposia, and sign-up for our newsletter and registry to keep abreast of the latest developments in research and management of this complex disease.
“The information we received at the 2019 Symposium was invaluable—as are the new friends we made.”
— Jade Smith, pictured here with Allyson & Geoffrey
Latest News
INDO-US BRIDGING RARE SUMMIT MEETS IN DELHI, INDIA
Representing the APS Type 1 Foundation, Board Member Pushpa Rao exhibited a poster on APS Type 1 at the Indo-US Bridging Rare Summit in Delhi, India, seeking to expand the network, include more patients of Indian origin in our APS Type 1 (APECED) Registry, and inspire research that benefits all. Over two and a half…
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