The APS Type 1 Foundation unites and empowers a global community to drive awareness, education, and groundbreaking research for APS Type 1, transforming lives affected by this rare autoimmune disorder.

Join The APS Type 1 (APECED) Registry

NEW! Please help us grow the registry with our new brochure. Share it with your care team.

The APS Type 1 (APECED) Registry is a secure database that provides a way to collect information from many different people with APS Type 1 and to update information over time as conditions and experiences change. The surveys are intended to gather information about many different aspects of APS Type 1, including details about diagnosis, prognosis, treatments, which disorders the patient has and when they were acquired, medications, hospitalizations and quality of life. Help us drive research!

Upcoming Events

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How We Help

We connect patients, families and doctors, support the work of scientists, and drive research forward.

Allyson, Jade and Geoffrey Smith

Stay Informed

The APS Type 1 Foundation brings the most up to date research to our community. Join our symposia, and sign-up for our newsletter and registry to keep abreast of the latest developments in research and management of this complex disease.

“The information we received at the 2019 Symposium was invaluable—as are the new friends we made.”
— Jade Smith, pictured here with Allyson & Geoffrey

Latest News

IT’S NOT TOO LATE TO GIVE

We are deeply grateful for the incredible generosity shown this Giving Tuesday, with over 60 individuals coming together to make a meaningful impact through their contributions.  Giving Tuesday may have passed, but there’s still time to participate in the giving season. You might be thinking, “I have no idea what to do.” Don’t worry—you’re in…

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INDO-US BRIDGING RARE SUMMIT MEETS IN DELHI, INDIA

Representing the APS Type 1 Foundation, Board Member Pushpa Rao exhibited a poster on APS Type 1 at the Indo-US Bridging Rare Summit in Delhi, India, seeking to expand the network, include more patients of Indian origin in our APS Type 1 (APECED) Registry, and inspire research that benefits all. Over two and a half…

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