The APS Type 1 Foundation supports education, awareness, and fundraising for critical research.

Join The APS Type 1 (APECED) Registry

The APS Type 1 (APECED) Registry is a secure database that provides a way to collect information from many different people with APS Type 1 and to update information over time as conditions and experiences change. The surveys are intended to gather information about many different aspects of APS Type 1, including details about diagnosis, prognosis, treatments, which disorders the patient has and when they were acquired, medications, hospitalizations and quality of life. Help us drive research! Register Now

How We Help

We connect patients, families and doctors, support the work of scientists, and drive research forward.

Stay Informed

The APS Type 1 Foundation brings the most up to date research to our community. Join our symposia, and sign-up for our newsletter and registry to keep abreast of the latest developments in research and management of this complex disease.


“The information we received at the 2019 Symposium was invaluable—as are the new friends we made.”
— Jade Smith, pictured here with Allyson & Geoffrey

Latest News

SAVE THE DATE: IDF/APS Type 1 Get Connected on August 8, 2020

Join us on August 8, 2020, at 1:00 p.m. ET to “GET CONNECTED”! We want to thank everyone who attended our first Get Connected Session!  Our first event was a great success with close to 20 families participating.  We had families from across the U.S., Canada, and Europe, with two families joining from Ireland!  …

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The EveryLife Foundation Announces #RAREis Scholarship Fund

We are pleased to share with you a scholarship opportunity offered by the EveryLife Foundation for Rare Diseases. The scholarship fund is intended to enrich the lives of adults living with rare diseases by providing support for their educational pursuits. Deadline for application is August 28, 2020 @ 3:00 p.m. CT. Please click here for…

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