We’ve known for some time now that APS Type 1 patients are at an increased risk for severe COVID-19 complications. For this reason, we’ve all been particularly cautious and vigilant. And, APS Type 1 patients have been urged to get vaccinated. Last week, the FDA and CDC recommended that people who are moderately to severely…
Read MoreThe APS Type 1 Foundation supports education, awareness, and fundraising for critical research.
Join The APS Type 1 (APECED) Registry
NEW! Please help us grow the registry with our new brochure. Share it with your care team.
The APS Type 1 (APECED) Registry is a secure database that provides a way to collect information from many different people with APS Type 1 and to update information over time as conditions and experiences change. The surveys are intended to gather information about many different aspects of APS Type 1, including details about diagnosis, prognosis, treatments, which disorders the patient has and when they were acquired, medications, hospitalizations and quality of life. Help us drive research! Register Now ›
How We Help
We connect patients, families and doctors, support the work of scientists, and drive research forward.
Stay Informed
The APS Type 1 Foundation brings the most up to date research to our community. Join our symposia, and sign-up for our newsletter and registry to keep abreast of the latest developments in research and management of this complex disease.
“The information we received at the 2019 Symposium was invaluable—as are the new friends we made.”
— Jade Smith, pictured here with Allyson & Geoffrey
Latest News
Looking for leaders for new committees!
As we continue to expand and grow our foundation, we realize that we need and want to tap into the amazing talent in our community. If you would like to get more involved, we are looking for two volunteer chairpersons to lead vital committees that are growing in our organization. Fundraising Chair – Are…
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