APS Type 1 Foundation, Inc.

The APS Type 1 Foundation unites and empowers a global community to drive awareness, education, and groundbreaking research for APS Type 1, transforming lives affected by this rare autoimmune disorder.

What is APS Type 1?

Register Now for the 6th International Symposium on APS Type 1 (July 2025)

Join The APS Type 1 (APECED) Registry

NEW! Please help us grow the registry with our new brochure. Share it with your care team.

The APS Type 1 (APECED) Registry is a secure database that provides a way to collect information from many different people with APS Type 1 and to update information over time as conditions and experiences change. The surveys are intended to gather information about many different aspects of APS Type 1, including details about diagnosis, prognosis, treatments, which disorders the patient has and when they were acquired, medications, hospitalizations and quality of life. Help us drive research!

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Upcoming Events

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How We Help

We connect patients, families and doctors, support the work of scientists, and drive research forward.

We Host A Bi-Annual Symposium
We Fund Cutting-Edge Research
We Built Our Own Registry
Allyson, Jade and Geoffrey Smith

Stay Informed

The APS Type 1 Foundation brings the most up to date research to our community. Join our symposia, and sign-up for our newsletter and registry to keep abreast of the latest developments in research and management of this complex disease.

“The information we received at the 2019 Symposium was invaluable—as are the new friends we made.”
— Jade Smith, pictured here with Allyson & Geoffrey

Latest News

News

Now Available: APS Type 1 Merch

We are thrilled to announce that we have a new online storefront for APS Type 1 merch! We wanted to give a lot of options and of course, give everyone a soft great material. We worked hard to find a great distributor to make the best quality product for our community and it has paid…

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