As we continue to expand and grow our foundation, we realize that we need and want to tap into the amazing talent in our community. If you would like to get more involved, we are looking for two volunteer chairpersons to lead vital committees that are growing in our organization. Fundraising Chair – Are…Read More
The APS Type 1 Foundation supports education, awareness, and fundraising for critical research.
Join The APS Type 1 (APECED) Registry
NEW! Please help us grow the registry with our new brochure. Share it with your care team.
The APS Type 1 (APECED) Registry is a secure database that provides a way to collect information from many different people with APS Type 1 and to update information over time as conditions and experiences change. The surveys are intended to gather information about many different aspects of APS Type 1, including details about diagnosis, prognosis, treatments, which disorders the patient has and when they were acquired, medications, hospitalizations and quality of life. Help us drive research! Register Now ›
Don’t miss this important session led by Dr. Lionakis (NIH) and moderated by Jennifer Orange (APS Type 1 Foundation). Check out the program and register here.Friday, June 25, 2021 12:00 pm - 12:45 pm Virtual
This important session will be led by Dr. Lionakis (NIH) and moderated by Jennifer Orange (APS Type 1 Foundation). Come with your questions! Check out…Friday, June 25, 2021 2:15 pm - 3:30 pm Virtual
The APS Type 1 Foundation brings the most up to date research to our community. Join our symposia, and sign-up for our newsletter and registry to keep abreast of the latest developments in research and management of this complex disease.
“The information we received at the 2019 Symposium was invaluable—as are the new friends we made.”
— Jade Smith, pictured here with Allyson & Geoffrey
Meet The Smith Family! My name is Jade Smith. I live in beautiful Southern California, where I am a teacher and single mom to 2 amazing children (I’m obviously biased, but they are really cool). Geoffrey turns 15 in July of 2021, and Allyson will turn 13 in November. They are both at the ages…Read More