NEWSLETTER 2022 ISSUE NO.3
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Highlights include:
PRESIDENT’S WELCOME REMARKS
UPDATE ON THE INAUGURAL SCIENTIFIC SUMMIT (OCT 2022)
2022 REGISTRY UPDATE
THE 5TH INTERNATIONAL SYMPOSIUM ON APS TYPE 1 (SAVE THE DATES)
APS TYPE 1 FOUNDATION DRIVES RESEARCH FORWARD
GIVING TUESDAY: FUNDRAISING UPDATE
COMMUNITY SPOTLIGHT: MEET OUR BOARD MEMBERS
NIH CLINICAL TRIAL UPDATE
DAVE’S RESEARCH CORNER
NEWSLETTER 2022 ISSUE NO.2
Highlights include:
PRESIDENT’S WELCOME REMARKS
GLOBAL SCIENTIFIC SUMMIT 2022
FOUNDATION FUNDS $50,000 NORD GRANT FOR 2022
CONGRATULATIONS TO DR. LIONAKIS
COMMUNITY SPOTLIGHT: JULIA BAND ORANGE
COMMUNITY SPOTLIGHT: MOLLY LIVINGSTONE
Kaitlyn Lovett – 2022 Memorial Fundraiser
DAVE’S RESEARCH CORNER
NEWSLETTER 2022 ISSUE NO. 1
Highlights include:
PRESIDENT’S WELCOME REMARKS
UPDATE ON THE RARE DISEASE DAY
CONGRATULATIONS TO DR. MICHAIL LIONAKIS
CONGRATULATIONS TO DR. MARK ANDERSON
FOUNDATION FUNDS $50,000 NORD GRANT FOR 2022
INTERNATIONAL MEETING OF DOCTORS & SCIENTISTS WORKING ON APS TYPE 1
GET CONNECTED: APS TYPE 1 x IDF – APRIL 23, 2022
NOW AVAILABLE: OFFICIAL REPORT FROM THE 4TH INTERNATIONAL SYMPOSIUM ON APS TYPE 1
DAVE’S RESEARCH CORNER
COMMUNITY SPOTLIGHT – ASHLEY HARRIS
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NEWSLETTER 2021 ISSUE NO.3
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Highlights include:
Holiday Greetings
THE APS TYPE 1 FOUNDATION WINS $50,000 GRANT AND RETAINS THE PARK GROUP
MARATHONER BECCA RAISES OVER $10,000
GET CONNECTED IN 2022
FOODIE WITH FLAVOR GABY SHARES NEW RECIPE
SYMPOSIUM VIDEOS NOW AVAILABLE
COMMUNITY HIGHLIGHTS: SOPHIE AND MADELINE
Newsletter 2021 Issue No 2.
Highlights include:
Community Spotlight:
Meet the Smith Family
Virtual Symposium on September 18th
Dr. Maureen Su joins our Medical Advisory Committee
Seeking Volunteers for Communications and Fundraising Committees
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Newsletter 2021 Issue No 1.
Highlights include:
Community Spotlight:
Primrose’s Path
Symposium Update and Possible Virtual Event
Registry Update
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Newsletter 2020 Issue No 3.
Highlights include:
We Need Your help!
Fall Fundraising Campaign
Dave’s Research Corner
Community Spotlight:
Marilena Manserra, MSW
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Newsletter 2020 Issue No 2.
Highlights include:
APS Type 1 (APECED) Registry Update
IDF/APS Type 1 Get Connected Session!
– Next Event is August 8, 2020, at 1:00 p.m. EDT
Research Summary: Identification of novel, clinically correlated autoantigens in the monogenic autoimmune syndrome APS1 by proteome-wide PhIP-Seq
Drug Shortage Alert: Hydrocortisone Remains in Short Supply
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Syris Dwyer and His Campaign for Brooklyn and all APS Type 1 Families
Newsletter 2020 Issue No 1.
Highlights include:
Research Updates: Research Grant Awarded
Research Summary
APS Type 1 (APECED) Registry Update
Community Spotlight:
Julie Finch
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Meet Julia Finch!
Newsletter 2019 Issue No 1.
Highlights include:
Introducing the APS Type 1 (APECED) Registry
Medical Advisory Board and Research Updates
Immune Deficiency Foundation’s IDF National Conference, 3rd International Symposium on APS Type 1
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