NEWSLETTER 2022 ISSUE NO.3
Highlights include:
PRESIDENT’S WELCOME REMARKS
UPDATE ON THE INAUGURAL SCIENTIFIC SUMMIT (OCT 2022)
2022 REGISTRY UPDATE
THE 5TH INTERNATIONAL SYMPOSIUM ON APS TYPE 1 (SAVE THE DATES)
APS TYPE 1 FOUNDATION DRIVES RESEARCH FORWARD
GIVING TUESDAY: FUNDRAISING UPDATE
COMMUNITY SPOTLIGHT: MEET OUR BOARD MEMBERS
NIH CLINICAL TRIAL UPDATE
DAVE’S RESEARCH CORNER
NEWSLETTER 2022 ISSUE NO.2
Highlights include:
PRESIDENT’S WELCOME REMARKS
GLOBAL SCIENTIFIC SUMMIT 2022
FOUNDATION FUNDS $50,000 NORD GRANT FOR 2022
CONGRATULATIONS TO DR. LIONAKIS
COMMUNITY SPOTLIGHT: JULIA BAND ORANGE
COMMUNITY SPOTLIGHT: MOLLY LIVINGSTONE
Kaitlyn Lovett – 2022 Memorial Fundraiser
DAVE’S RESEARCH CORNER
NEWSLETTER 2022 ISSUE NO. 1
Highlights include:
PRESIDENT’S WELCOME REMARKS
UPDATE ON THE RARE DISEASE DAY
CONGRATULATIONS TO DR. MICHAIL LIONAKIS
CONGRATULATIONS TO DR. MARK ANDERSON
FOUNDATION FUNDS $50,000 NORD GRANT FOR 2022
INTERNATIONAL MEETING OF DOCTORS & SCIENTISTS WORKING ON APS TYPE 1
GET CONNECTED: APS TYPE 1 x IDF – APRIL 23, 2022
NOW AVAILABLE: OFFICIAL REPORT FROM THE 4TH INTERNATIONAL SYMPOSIUM ON APS TYPE 1
DAVE’S RESEARCH CORNER
COMMUNITY SPOTLIGHT – ASHLEY HARRIS
NEWSLETTER 2021 ISSUE NO.3
Highlights include:
Holiday Greetings
THE APS TYPE 1 FOUNDATION WINS $50,000 GRANT AND RETAINS THE PARK GROUP
MARATHONER BECCA RAISES OVER $10,000
GET CONNECTED IN 2022
FOODIE WITH FLAVOR GABY SHARES NEW RECIPE
SYMPOSIUM VIDEOS NOW AVAILABLE
COMMUNITY HIGHLIGHTS: SOPHIE AND MADELINE
Newsletter 2021 Issue No 2.
Highlights include:
Community Spotlight:
Meet the Smith Family
Virtual Symposium on September 18th
Dr. Maureen Su joins our Medical Advisory Committee
Seeking Volunteers for Communications and Fundraising Committees
Newsletter 2021 Issue No 1.
Highlights include:
Community Spotlight:
Primrose’s Path
Symposium Update and Possible Virtual Event
Registry Update
Newsletter 2020 Issue No 3.
Highlights include:
We Need Your help!
Fall Fundraising Campaign
Dave’s Research Corner
Community Spotlight:
Marilena Manserra, MSW
Newsletter 2020 Issue No 2.
Highlights include:
APS Type 1 (APECED) Registry Update
IDF/APS Type 1 Get Connected Session!
– Next Event is August 8, 2020, at 1:00 p.m. EDT
Research Summary: Identification of novel, clinically correlated autoantigens in the monogenic autoimmune syndrome APS1 by proteome-wide PhIP-Seq
Drug Shortage Alert: Hydrocortisone Remains in Short Supply
Syris Dwyer and His Campaign for Brooklyn and all APS Type 1 Families
Newsletter 2020 Issue No 1.
Highlights include:
Research Updates: Research Grant Awarded
Research Summary
APS Type 1 (APECED) Registry Update
Community Spotlight:
Julie Finch
Meet Julia Finch!
Newsletter 2019 Issue No 1.
Highlights include:
Introducing the APS Type 1 (APECED) Registry
Medical Advisory Board and Research Updates
Immune Deficiency Foundation’s IDF National Conference, 3rd International Symposium on APS Type 1
