Newsletter 2020 Issue No 3.

Highlights include:

With your help, we are making terrific progress towards our goal of having over 100 people in our APS Type 1/APECED Registry. We now have 75 people who have registered!

We Need Your help!
Fall Fundraising Campaign

Dave’s Research Corner

Community Spotlight
Marilena Manserra, MSW


Newsletter 2020 Issue No 2.

Highlights include:

Community Spotlight
Syris Dwyer and His Campaign for Brooklyn and all APS Type 1 Families

APS Type 1 (APECED) Registry Update

IDF/APS Type 1 Get Connected Session!
– Next Event is August 8, 2020, at 1:00 p.m. EDT

Research Summary: Identification of novel, clinically correlated autoantigens in the monogenic autoimmune syndrome APS1 by proteome-wide PhIP-Seq

Drug Shortage Alert: Hydrocortisone Remains in Short Supply


Newsletter 2020 Issue No 1.

Highlights include:

Research Updates: Research Grant Awarded

Research Summary

Community Spotlight:
Meet Julia Finch!

APS Type 1 (APECED) Registry Update


Newsletter 2019 Issue No 1.

Highlights include:

3rd International Symposium on APS Type 1 Group Photo

Introducing the APS Type 1 (APECED) Registry

Medical Advisory Board and Research Updates

Immune Deficiency Foundation’s IDF National Conference, 3rd International Symposium on APS Type 1