Newsletters

Newsletter 2021 Issue No 1.

Highlights include:

Community Spotlight:
Primrose’s Path

Symposium Update and Possible Virtual Event

Registry Update

Primrose’s Path

Newsletter 2020 Issue No 3.

Highlights include:

We Need Your help!
Fall Fundraising Campaign

Dave’s Research Corner

Community Spotlight:
Marilena Manserra, MSW

With your help, we are making terrific progress towards our goal of having over 100 people in our APS Type 1/APECED Registry. We now have 75 people who have registered!

Newsletter 2020 Issue No 2.

Highlights include:

APS Type 1 (APECED) Registry Update

IDF/APS Type 1 Get Connected Session!
– Next Event is August 8, 2020, at 1:00 p.m. EDT

Research Summary: Identification of novel, clinically correlated autoantigens in the monogenic autoimmune syndrome APS1 by proteome-wide PhIP-Seq

Drug Shortage Alert: Hydrocortisone Remains in Short Supply

Community Spotlight
Syris Dwyer and His Campaign for Brooklyn and all APS Type 1 Families

Newsletter 2020 Issue No 1.

Highlights include:

Research Updates: Research Grant Awarded

Research Summary

APS Type 1 (APECED) Registry Update

Community Spotlight:
Julie Finch

Community Spotlight:
Meet Julia Finch!

Newsletter 2019 Issue No 1.

Highlights include:

Introducing the APS Type 1 (APECED) Registry

Medical Advisory Board and Research Updates

Immune Deficiency Foundation’s IDF National Conference, 3rd International Symposium on APS Type 1

3rd International Symposium on APS Type 1 Group Photo