NEWSLETTER 2022 ISSUE NO. 1

Highlights include:

PRESIDENT’S WELCOME REMARKS

UPDATE ON THE RARE DISEASE DAY

CONGRATULATIONS TO DR. MICHAIL LIONAKIS

CONGRATULATIONS TO DR. MARK ANDERSON

FOUNDATION FUNDS $50,000 NORD GRANT FOR 2022

INTERNATIONAL MEETING OF DOCTORS & SCIENTISTS WORKING ON APS TYPE 1

GET CONNECTED: APS TYPE 1 x IDF – APRIL 23, 2022

NOW AVAILABLE: OFFICIAL REPORT FROM THE 4TH INTERNATIONAL SYMPOSIUM ON APS TYPE 1  

DAVE’S RESEARCH CORNER

COMMUNITY SPOTLIGHT ASHLEY HARRIS



NEWSLETTER 2021 ISSUE NO.3

Highlights include:

Holiday Greetings

THE APS TYPE 1 FOUNDATION WINS $50,000 GRANT AND RETAINS THE PARK GROUP

MARATHONER BECCA RAISES OVER $10,000

GET CONNECTED IN 2022

FOODIE WITH FLAVOR GABY SHARES NEW RECIPE

SYMPOSIUM VIDEOS NOW AVAILABLE

COMMUNITY HIGHLIGHTS: SOPHIE AND MADELINE


Newsletter 2021 Issue No 2.

Highlights include:

Community Spotlight:
Meet the Smith Family

Virtual Symposium on September 18th

Dr. Maureen Su joins our Medical Advisory Committee

Seeking Volunteers for Communications and Fundraising Committees

Jade and Allyson Smith

Newsletter 2021 Issue No 1.

Highlights include:

Community Spotlight:
Primrose’s Path

Symposium Update and Possible Virtual Event

Registry Update

Primrose’s Path

Newsletter 2020 Issue No 3.

Highlights include:

We Need Your help!
Fall Fundraising Campaign

Dave’s Research Corner

Community Spotlight:
Marilena Manserra, MSW

With your help, we are making terrific progress towards our goal of having over 100 people in our APS Type 1/APECED Registry. We now have 75 people who have registered!

Newsletter 2020 Issue No 2.

Highlights include:

APS Type 1 (APECED) Registry Update

IDF/APS Type 1 Get Connected Session!
– Next Event is August 8, 2020, at 1:00 p.m. EDT

Research Summary: Identification of novel, clinically correlated autoantigens in the monogenic autoimmune syndrome APS1 by proteome-wide PhIP-Seq

Drug Shortage Alert: Hydrocortisone Remains in Short Supply

Community Spotlight
Syris Dwyer and His Campaign for Brooklyn and all APS Type 1 Families

Newsletter 2020 Issue No 1.

Highlights include:

Research Updates: Research Grant Awarded

Research Summary

APS Type 1 (APECED) Registry Update

Community Spotlight:
Julie Finch

Community Spotlight:
Meet Julia Finch!

Newsletter 2019 Issue No 1.

Highlights include:

Introducing the APS Type 1 (APECED) Registry

Medical Advisory Board and Research Updates

Immune Deficiency Foundation’s IDF National Conference, 3rd International Symposium on APS Type 1

3rd International Symposium on APS Type 1 Group Photo