Welcome to 2024, we hope that you and your family have kicked off the new year with good health and happiness! Our spring newsletter will highlight some of the amazing activities of our community already this year and provide you with a look at what we are focused on for 2024. Make sure you read about…
Read MoreFOCIS Conference
We are thrilled to announce that The APS 1 Foundation is partnering with the Clinical Immunology Society and National Institute of Allergy and Infectious Diseases (NIAID) to hold a symposium at this June’s FOCIS conference in San Francisco. FOCIS will bring together leading clinicians and researchers delivering the latest breakthroughs across immunology. It is a key meeting for translational immunology. The title of the…
Read MoreAstraZeneca inks $800M buyout of French biotech to snag phase 3 rare disease drug
By Nick Paul Taylor AstraZeneca is paying $800 million to expand into rare endocrinology, snagging itself a phase 3 candidate through the acquisition of French biotech Amolyt Pharma. The deal features $250 million in milestones tied to a regulatory event. Buying Amolyt will give AstraZeneca control of eneboparatide, a PTHR1 agonist that the biotech moved into phase 3 in June….
Read MoreJob Announcement: The APS Type 1 Foundation Seeks Part-Time Executive Director
2024 Rare Disease Day: How You Can Make A Difference!
On February 29th, please join us in raising awareness about APS Type 1 as we celebrate the Rare Disease Day! Post messages, photos, videos, or whatever you think best shares your story on social media and add the hashtag #APS1WeAreRare. February 29th is the International Rare Disease Day. This day is dedicated to raising awareness and generating change for the 300…
Read MoreGold Seal of Transparency with Candid
We’ve earned our Gold Seal of Transparency with Candid. Get updates on our impact through our #NonprofitProfile https://www.guidestar.org/profile/32-0241819
Read MoreGiving Thanks on Giving Tuesday
With a lofty goal of $25,000, the Foundation initiated an email campaign in early November, asking members of the community to activate their networks in giving. The idea behind this approach was to expand our reach and get all families invested in our common mission. Email templates were provided to make the process as easy…
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The Kaitlyn Lovett Memorial Christmas Tournament continues to give back!
The Kaitlyn Lovett Memorial Christmas Tournament continues to give back! They raised over $15,000 at last year’s tournament, which supported travel grants to attend our summer symposium for many of our families. Kaitlyn’s mother, Maureen Lovett, shared with the Foundation that it was important to Kaitlyn to positively impact the lives of those with APS…
Read MoreCommunity Spotlight: Payton Ditty
You are not alone in this world, I love you, we all love you and are here to support you through your journey. Payton Ditty Hi! My name’s Payton. I was first diagnosed with APS Type 1 at the age of 7 after an adrenal crisis that lasted weeks. That was the start of my…
Read MoreDave’s Research Corner: Featuring “Autoimmunity and Cancer – Two Sides of the Same Coin”
APS Type 1 research has long been seen as a bridge to gaining insights into the treatment of many other autoimmune disorders, and as this article makes clear, may also help provide a bridge into gaining insights the treatment of cancer. Title Autoimmunity and Cancer – Two sides of the Same Coin Authors Justyna Sakowska,…
Read MoreVideo recordings from the 5th International Symposium on APS Type 1
We are thrilled to share with you that the video recordings from the 5th International Symposium on APS Type 1 are now available on Youtube! Please click here to watch the videos.
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