Latest News

We are delighted to share another momentous occasion in our journey towards finding a cure for APS Type 1 and supporting those affected by this rare disease. Thanks to the generosity of our dedicated donors and supporters, The APS Type 1 Foundation is proud to announce that Amy Coan has joined us as Director of…

By: David Seyfert In 2022, at the Foundation’s inaugural Global Scientific Summit, Dr. Olle Kämpe (pictured in center photo) and I were discussing APS Type 1, the AIRE gene, and the critical importance the two played in our understanding of how the immune system works, specifically in regards to the concept known as “central tolerance.”…

The 6th International Symposium on APS Type 1 did not disappoint!   We welcomed over one hundred clinicians, researchers, APS Type 1 families and friends to beautiful San Francisco to: We’re happy so many people were able to join us. If you weren’t able to make it this year, we hope to see you at our…

“The Aps Type 1 Foundation” Facebook page is the official page of the Foundation. The Foundation also has an official Instagram page as well! We encourage you to follow us for: The following Facebook groups are additional support groups where our members can interact more informally and directly with one another. These support group pages…

Would you like support as you navigate APS Type 1 as a patient or caregiver? Join others in the Raregivers™  community Raregivers Inc. is a global network that delivers emotional support to caregivers, patients and professionals in rare, chronic and complex disease communities. Find support through weekly Self-Care Tuesday Zoom meetings (10 am PT), monthly…

We’re thrilled to shine a spotlight on Carina Leveroni, our first student intern and a dedicated ally to our community whose passion for science and service is an inspiration. The APS Type 1 Foundation really hit the jackpot with our first student intern, Carina Leveroni.  Carina graduated from the University of San Diego in May…

Medical bracelets are not just for fashion; they can help save your life. Some people think these bracelets are a bother to have to wear constantly, but when you’re in a crisis, it can help tell the paramedics how to treat you right away. In the past, there were limited options for purchasing bracelets. Today,…

We know how critical timely access to care is—especially for those living with rare and chronic diseases like APS Type 1. That’s why we’re encouraged by a new commitment made this week by many major health insurance companies to reduce unnecessary delays in care caused by prior authorization (PA) processes. A New Commitment to Change…

We are asking for your help, once again, in collectively responding to proposed legislation that will negatively impact our APS Type 1 community. The Senate is currently debating a reconciliation bill (aka the “One Big Beautiful Bill Act”) passed by the House last month. The bill contains devastating cuts that will negatively affect access to…

In the last year, the NIH has written and presented three works detailing their research on using JAK inhibitors (targeted immunosuppressants) to treat APS Type 1 manifestations.  The results are promising for our community, and the NIH team is continuing their efforts to advance the research.  We are grateful for their work and look forward to…

As all other people living with APS Type 1, my journey has not been linear, and there have been lots of ups and downs. Having a rare disease is hard because one day one thing can get better, but the next day something else can get worse. Leaning on my faith through this disease has…