“You can imagine the loneliness of having a disease most people have never heard of, has no treatment, and is not being studied by medical researchers,” Julia said. “Through my Gold Award project, I hope to inspire my community to celebrate our differences and to be kind humans.”

Full text of the article can be found at: https://www.theacorn.com/articles/sisters-share-the-love-on-rare-disease-day/.

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