APS Type 1 Families and Friends, As a national emergency was announced in the US yesterday, the Foundation is taking this moment to make sure we are doing everything we can to help ensure the safety and health of our APS Type 1 Family. We’re sure you have received a lot of communications regarding how…
Read More
Jennifer Orange, October 2019 In late October, I travelled to Washington DC to attend the National Organization for Rare Disorders Summit. For me the Summit had three parts. I spent Sunday, October 20 with a group of inspiring leaders of rare disease organizations in a session designed to facilitate organizational development. It was remarkable how…
Read More
In August my company asked me to pull together a presentation on Advocacy. Our patient advocacy coordinator knew I was involved with a foundation and asked if I’d share my advocacy experience. I agreed.
Read More
This is our story about Gaby’s 6 years of missed diagnosis, and how you can prevent this from happening.
Read More