NORD applauds critical health care reforms  

NORD and 18 other patient organizations representing millions of people with pre-existing conditions issued a statement on June 30 in support of specific patient protections and affordability provisions included in the Patient Protection and Affordable Care Enhancement Act, which passed in the House of Representatives on June 29. This legislation would provide essential supports to the millions who face economic uncertainty by ensuring middle-class individuals and families have improved access to affordable health insurance by expanding eligibility for tax credits. It also provides increased federal funding to expand Medicaid so the program can continue to serve the needs of people, including those living with pre-existing conditions. The bill now awaits consideration in the Senate.
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NORD led a patient advocacy group sign-on letter in support of the Rare Disease Advisory Council bill

On July 20, NORD submitted a letter to the Massachusetts House Ways and Means Committee in support of House Bill 4268, with over 25 patient groups. This legislation would create a Rare Disease Advisory Council in Massachusetts. There are only a few more weeks to push this bill along! Do you live in Massachusetts or have family members or friends there? Please ask them to take action to tell their legislators what this would mean for the rare disease community.
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