Your generosity and support now will help make it possible for us to accomplish the following critical objectives in 2023:
- Host our 5th International Symposium in Washington, D.C. in July 2023 to bring patients, families and researchers together.
- Continue to build our global research network and fund critical research.
- Raise awareness and shorten the time for diagnosis by publishing our registry data.
- Support patients and families as they meet the challenges of living and thriving with chronic illness.
- And so much more.