Look what’s happening in Massachusetts! Check out your state and see if your state has a Rare Disease Advisory Council. Let us know so we can help spread the word.
NORD led a patient advocacy group sign-on letter in support of the Rare Disease Advisory Council bill
On July 20, NORD submitted a letter to the Massachusetts House Ways and Means Committee in support of House Bill 4268, with over 25 patient groups. This legislation would create a Rare Disease Advisory Council in Massachusetts. There are only a few more weeks to push this bill along! Do you live in Massachusetts or have family members or friends there? Please ask them to take action to tell their legislators what this would mean for the rare disease community.