DO YOU KNOW A STUDENT WHO IS INTERESTED IN
RAISING AWARENESS?
February 28 (the rarest last day of the year) marks World Rare Disease Day. Julia Band Orange and Julia Finch have compiled materials to create a “Rare Disease Day In-a-Box”! Please click here to find an awareness video, a sample speech, an article for a school newspaper, an information booklet, and instructions on how to recycle old jeans into denim ribbons (80% of rare diseases are genetic, so wear jeans to celebrate genes).
Please share this helpful toolkit with any students who may be interested in hosting an event this year.
For more ways to celebrate Rare Disease Day this year, visit rarediseaseday.org.