The 6th International Symposium on APS Type 1 did not disappoint! We welcomed over one hundred clinicians, researchers, APS Type 1 families and friends to beautiful San Francisco to: We’re happy so many people were able to join us. If you weren’t able to make it this year, we hope to see you at our…
Read MoreThe APS Type 1 Foundation unites and empowers a global community to drive awareness, education, and groundbreaking research for APS Type 1, transforming lives affected by this rare autoimmune disorder.
Join The APS Type 1 (APECED) Registry
NEW! Please help us grow the registry with our new brochure. Share it with your care team.
The APS Type 1 (APECED) Registry is a secure database that provides a way to collect information from many different people with APS Type 1 and to update information over time as conditions and experiences change. The surveys are intended to gather information about many different aspects of APS Type 1, including details about diagnosis, prognosis, treatments, which disorders the patient has and when they were acquired, medications, hospitalizations and quality of life. Help us drive research!
How We Help
We connect patients, families and doctors, support the work of scientists, and drive research forward.
Stay Informed
The APS Type 1 Foundation brings the most up to date research to our community. Join our symposia, and sign-up for our newsletter and registry to keep abreast of the latest developments in research and management of this complex disease.
“The information we received at the 2019 Symposium was invaluable—as are the new friends we made.”
— Jade Smith, pictured here with Allyson & Geoffrey
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Connect With Us On Social Media
“The Aps Type 1 Foundation” Facebook page is the official page of the Foundation. The Foundation also has an official Instagram page as well! We encourage you to follow us for: The following Facebook groups are additional support groups where our members can interact more informally and directly with one another. These support group pages…
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