There are many ways you can support our cause financially.
Restricted Research Grant with NORD:
Through 2014 we have been supporting a Restricted Research Grant for APS Type 1 through NORD (National Organization for Rare Disorders). We have raised over $300,000 and are currently supporting our 5th research grant with University of California San Francisco. NORD’s medical advisory committee has supported the review and selection of appropriate projects from a global research database. The research currently being conducted is supporting a greater understanding of the AIRE gene and proper testing and identification.
If you’d like to make a tax deductible donation, use the button belowDonate
APS TYPE 1 Foundation:
The foundation is established to support education and disease awareness as well as continued efforts to support fundraising opportunities for those living with the challenges of this condition. In 2015 the foundation will be supporting the 1st Annual Symposium on APS Type 1 in June through a Grant that will provide financial support to minimize the costs for those attending. A donation page is in development so please check back or e-mail us if you’d like to support our activities.
An Invitation From The Finch Family
As some of you know, our 8 year old daughter, Samantha (she’s quite “something”), has a rare autoimmune disorder called Autoimmune Poly-glandular Syndrome Type 1. This genetic disorder affects only 1 in every 2-3 million people. That’s only about 150 people in the United States. There is no cure and treatments are passable at best. Because this condition is so rare, funds for necessary medical research are scarce. With your help, we’re hoping to raise enough in 2016 to fund a single research grant. In our hearts, we know that there will be a cure in Samantha’s lifetime, but we need your help to make that happen. Proceeds benefit The APS Type 1 Foundation, a 501(c)(3) charitable organization.
Here are the Details
When: April 23, 2016, 1 – 4 pm
Where: Agoura High School Gym
Who: Friends & family, kids of all ages
Why: Care about Rare