We know how critical timely access to care is—especially for those living with rare and chronic diseases like APS Type 1. That’s why we’re encouraged by a new commitment made this week by many major health insurance companies to reduce unnecessary delays in care caused by prior authorization (PA) processes. A New Commitment to Change…
Read MoreThe APS Type 1 Foundation unites and empowers a global community to drive awareness, education, and groundbreaking research for APS Type 1, transforming lives affected by this rare autoimmune disorder.
Join The APS Type 1 (APECED) Registry
NEW! Please help us grow the registry with our new brochure. Share it with your care team.
The APS Type 1 (APECED) Registry is a secure database that provides a way to collect information from many different people with APS Type 1 and to update information over time as conditions and experiences change. The surveys are intended to gather information about many different aspects of APS Type 1, including details about diagnosis, prognosis, treatments, which disorders the patient has and when they were acquired, medications, hospitalizations and quality of life. Help us drive research!
How We Help
We connect patients, families and doctors, support the work of scientists, and drive research forward.
Stay Informed
The APS Type 1 Foundation brings the most up to date research to our community. Join our symposia, and sign-up for our newsletter and registry to keep abreast of the latest developments in research and management of this complex disease.
“The information we received at the 2019 Symposium was invaluable—as are the new friends we made.”
— Jade Smith, pictured here with Allyson & Geoffrey
Latest News
Advocacy Opportunity: Big Beautiful Bill
We are asking for your help, once again, in collectively responding to proposed legislation that will negatively impact our APS Type 1 community. The Senate is currently debating a reconciliation bill (aka the “One Big Beautiful Bill Act”) passed by the House last month. The bill contains devastating cuts that will negatively affect access to…
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