Nord

The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Global Genes

Global Genes® is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon®. What began as a grassroots movement in 2009 , with just a few rare disease parent advocates and foundations , has since grown to over 500 global organizations. Its mission is to eliminate the challenges of rare disease. It builds awareness, educates the global community, and provides critical connections and resources that equip advocates to become activists for their disease.

Immune Deficiency Foundation

The Immune Deficiency Foundation (IDF) is dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiencies. Among other things, IDF hosts a biannual national conference in varied and diverse locations throughout the U.S., which is a preeminent platform for all facets of the primary immunodeficiency (PI) community. From physicians to nurses to specialized life management experts, patients and families are presented with an unsurpassed opportunity to network with those on the cutting edge of research and treatment. The IDF National Conference brings together individuals from all sectors of the PI community. Its National Conference is the world’s largest gathering of families affected by PI.

Hypoparathyroidism Association

The HypoPARAthyroidism Association is an non-profit patient organization working to improve lives touched by hypoparathyroidism, a rare medical disorder in which the parathyroid glands fail to produce sufficient amounts of the parathyroid hormone. We are directed by an unpaid volunteer Board of Directors and are overseen by a Medical Advisory Board

Adrenal Insufficiency United

At Adrenal Insufficiency United (AIU), they work to improve the lives of those affected by adrenal insufficiency through support, education, collaboration, and legislative action. AIU has grown from a small passionate group, into a large network of people working together. They provide patient support through our support groups and website information. They create educational materials for schools, physicians, and emergency teams, and they collaborate with other organizations to promote awareness and improve patient care. its work on protocols and legislation takes place on both state and national levels.

EndocrinWeb

Welcome to the largest web site for Thyroid, Parathyroid and other Endocrine Disorders. This information is intended for the education of patients and their families. There are over 130 very detailed but easy to understand pages on endocrine disease, conditions, hormone problems, and treatment options including all types of thyroid, parathyroid, and adrenal surgery. All pages were written by physicians who treat these diseases.

National Institute of Health

The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research.

ClinicalTrials.gov

Provides regularly updated information about federally and privately supported clinical research in human volunteers.

Juvenile Diabetes Research Foundation

Is the leading charitable funder and advocate of type 1 (juvenile) diabetes research worldwide. The mission of JDRF is to find a cure for diabetes and its complications through the support of research.

Endocrine Today

Clinical news on Diabetes and Endocrine Disorders.

The MedicAlert Foundation

A non-profit healthcare informatics organization dedicated to providing services to our members that protect and save lives.

EURO-THYMAIDE

The first European Research Integrated Project (IP) aiming at understanding the mechanisms underlying the development of autoimmune diseases, by exploring the major biological functions of the thymus.

ORPHANET

Is a database dedicated to information on rare diseases and orphan drugs. Access to this database is free of charge.

Global Health Network

Provider of medial information, support and advocacy for the people of all nations who suffer from disabilities, diseases and disorders.

EURAPECED

Europeon Physician Consortium for knowledge and research on APECED.