The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Hypoparathyroidism Foundation

The HypoPARAthyroidism Association is an non-profit patient organization working to improve lives touched by hypoparathyroidism, a rare medical disorder in which the parathyroid glands fail to produce sufficient amounts of the parathyroid hormone. We are directed by an unpaid volunteer Board of Directors and are overseen by a Medical Advisory Board


Welcome to the largest web site for Thyroid, Parathyroid and other Endocrine Disorders. This information is intended for the education of patients and their families. There are over 130 very detailed but easy to understand pages on endocrine disease, conditions, hormone problems, and treatment options including all types of thyroid, parathyroid, and adrenal surgery. All pages were written by physicians who treat these diseases.

National Institute of Health

The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research.

Provides regularly updated information about federally and privately supported clinical research in human volunteers.

Juvenile Diabetes Research Foundation

Is the leading charitable funder and advocate of type 1 (juvenile) diabetes research worldwide. The mission of JDRF is to find a cure for diabetes and its complications through the support of research.

Endocrine Today

Clinical news on Diabetes and Endocrine Disorders.

The MedicAlert Foundation

A non-profit healthcare informatics organization dedicated to providing services to our members that protect and save lives.


The first European Research Integrated Project (IP) aiming at understanding the mechanisms underlying the development of autoimmune diseases, by exploring the major biological functions of the thymus.


Is a database dedicated to information on rare diseases and orphan drugs. Access to this database is free of charge.

Global Health Network

Provider of medial information, support and advocacy for the people of all nations who suffer from disabilities, diseases and disorders.


Europeon Physician Consortium for knowledge and research on APECED.

Genetic Testing for APS Type 1

Athena Labs is a leading provider of advanced neurological diagnostic assays. Our expertise includes diagnosis in the areas of: peripheral nerve disorders, neurogenetic disorders, Alzheimer’s disease, paraneoplastic syndromes, movement disorders, neuromuscular disorders, and ataxia.