Congratulations to the APS Type 1 (APECED) Registry community! We’ve enrolled over 100 patients (106 to be exact) into our very own registry, The APS Type 1 (APECED) Registry. We have big plans for 2023, including publishing an article using the patient data we’ve collected so far in collaboration with UCLA. We plan to curate the data from the registry for our upcoming article in January so now is the perfect time to enroll (if you haven’t already) or to update your survey responses (if you’ve already enrolled). Help make your mark on our efforts to raise awareness and find a cure.
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