In June 2019 the 3rd International Symposium on APS Type 1 was held in partnership with the Immune Deficiency Foundation’s IDF National Conference in National Harbor, Maryland.

2019 Video title


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2019 Video title


In July 2017 the second 2nd International Symposium on APS Type 1 was held at Stony Brook University, New York.

Introduction to APS Type 1

Dr. Andrew Lane

Keynote Address: APECED in 2017: Current Developments and Future Prospects

Dr. Michail Lionakis

Navigating the U.S. School System

Mr. Brian Dwyer, Ms. Nancy Wilson and Mr. David Seyfert

Fertility Preservation in APS Type 1 Patients

Dr. Suneeta Senapati & Dr. Justine Witzke

Responding to Emergencies: Adrenal Insufficiency and Low Calcium

Mr. Todd Talarico, Dr. Olle Kämpe, Dr. Cheri Deal & Dr. Richard Auchus

Managing Eye Care in APS Type 1

Mr. David Seyfert & Dr. Asim Ali

Let’s Talk About Registries

Ms. Robin Finch

What Type 1 Diabetes Can Learn from APS Type 1

Dr. Mark Anderson

Let’s Talk About Registries

Ms. Robin Finch

How to Find the Undiagnosed APS Type 1 Patient

Dr. Mark Anderson, Dr. Eystein Husebye, Dr. Olle Kämpe & Dr. Michail Lionakis

Let’s Talk About Registries

Ms. Robin Finch

Current Thymus Research

Dr. Louise Markert, Dr. Audrey Parent

Let’s Talk About Registries

Ms. Robin Finch

Immunosuppression: When, Why and How?

Ms. Susan Livingstone, Dr. Michail Lionakis\

The Broader Implications of APS Type 1 Research

Dr. Bill Robinson,Dr. Eystein Husebye, Dr. Adrian Hayday, & Dr.Christina Hertel

In June 2015, the first International Symposium on APS1 was held at SickKids Hospital in Toronto, Canada, with over 100 participants, including 20 APS Type 1 families. Below is a copy of the program with available videos. We look forward to seeing you at our 2017 Symposium!

Friday, June 5, 2015

Welcome and Introductions

Irene Lara-Corrales and Jennifer Orange

Introduction to APS-1

Jennifer Harrington

Diagnosis: When to suspect it, how to make it, genetic counselling

Todd Talarico, Mihalis Lionakis, and Lucie Dupuis

Endocrinology-key issues in managing hypoparathyroidism

Karen Winer

GI: Key issues in managing malabsorption

Peggy Marcon

Problem Solving Panel (Endrocrine/GI): How to work together when complications flare-up

Moderator: Eyal Cohen
Panel members: Pablo Ramirez, Karen Winer, and Peggy Marcon

Introduction to the Dr. Robert P. Orange Lectureship

Keynote Speakers: Lessons from the European APS-1 Registry

Eyestein Husebye

Olle Kampe

Complex care patients: practical tips for physicians and families

Jennifer Orange, Eyal Cohen and Kathy Netten

Autoimmune Hepatitis in APS1

Susan Rubio

Theo Heller

Panel Discussion: Biology and Immunology of AIRE

Panel Members: Jennifer Orange, Michail Lionakis, Mark Anderson and Eric Meffre

(no video available)

The Impact of APS1 on Quality of Life

Nicolas Kruger

Growing up with APS-1

Julia Band Orange

(no video available)

Gaby Talarico

Julia Richardson

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