Dear Friends and Family,
As many of you know, our nine year old daughter, Samantha, has a rare, autoimmune disease called Autoimmune Polyglandular Syndrome Type 1 (APS Type 1, for short). APS Type 1 is a complex, genetic disorder that affects multiple organs, primarily a person’s endocrine glands. In Samantha’s case, she has a number of autoimmune conditions including hypoparathyroidism (inability to maintain appropriate blood and bone calcium levels), Addison’s Disease (adrenal insufficiency, JFK had it), alopecia areata (severe hair loss), and tooth and nail problems. Unfortunately, many APS Type 1 patients aren’t as lucky as Samantha. For most, the disease has had a much more severe impact, including Type 1 diabetes, autoimmune hepatitis, and hypothyroidism.
Please join us for our second annual event to promote awareness of the disorder and to raise funds for The APS Type 1 Foundation, a 501(c)(3) charitable foundation. On May 20, 2017, we’ll spend a couple hours with fun basketball contests, a photo booth, balloon art, food carts, a silent auction, and just plain fun.
Last year, thanks to your overwhelming generosity, we shattered our $50,000 fundraising goal. With your help, the Foundation funded a critical $100,000 research grant, is organizing and hosting a second international symposium this summer for patients, families and researchers, and is creating a rare disease registry. This year, we aim to take another big step forward towards a cure.
We are very grateful for your support and participation. Please visit our website at www.Samanthas-Something.org for more information.
Robin and Brent Finch