Press Release: Second International Symposium on APS Type 1

FOR IMMEDIATE RELEASE CONTACT: Jennifer Orange 416-409-9139

JULY 13 TO 15, 2017 AT


Leading international clinicians, researchers, patients and families will take part in a three day symposium to present and discuss new advances in solving the riddle of a rare disease, Autoimmune Polyglandular Syndrome Type 1 (“APS Type 1” or “APECED”). Over 100 participants are registered to attend this second international symposium.

Over the past three years, the APS Type 1 Foundation, together with physician-scientists, has been creating a research and support community where none existed in North America. Most patients spent their lives never knowing another patient with their disease, and most doctors do not know whom to call when they see a patient with its unusual cluster of symptoms. According to a 2011 study, the average diagnosis of APS Type 1 takes 10 long years. The APS Type 1 Foundation is determined to improve that statistic and to catalyze research on this rare disease by establishing a patient registry and identifying the mutated AIRE gene. Patients and family members have become determined citizen scientists, tracking their own symptoms, sharing treatment experiences, and finding new patients for studies.

That partnership between the citizen scientist and clinician/scientist will be on display at the Second International Symposium on APS Type 1, at the Wang Center at Stony Brook Medical Center, Stony Brook, NY, July 13 to 15, 2017. Clinicians and scientists from England, Sweden, Norway, Canada and the U.S., as well as patients and their families, will present latest findings and future prospects. Dr. Michail Lionakis of the National Institutes of Health is the keynote speaker. Patient Pablo Ramirez, a college student will facilitate the Young People’s Discussion.

Other presenters from Europe, Canada and the U.S. include Dr. Andrew Lane, Stony Brook University, U.S.; Dr. Olle Kampe, Karolinska Institutet, Sweden; Dr. Cheri Deal, University of Montreal, Canada; Dr. Louise Markhert, Duke University, U.S.; Dr. Audrey Parent, University of California, SF, U.S.; Dr. Eystein Husebye, University of Bergen and Haukeland, Norway; Dr. Bill Robinson, Stanford University, U.S.; Ms. Jennifer Orange, family member, Canada; Mr. David Seyfert, family member, U.S.; Mr. Brian Dwyer, family member, U.S., Dr. Asim Ali, Hospital for Sick Children, Canada and Mr. Todd Talarico, President APS 1 Foundation.

The first Symposium was held in 2015 at the Hospital for Sick Children, in Toronto, Ontario.

For more information, see the symposium web site at and the APS Type 1 Foundation at Registration for the symposium is free.

Leave a Reply

maintaining and monitoring FIM is 21 percent. It is clear that you will need to master all important and proper preparation should be taken before sitting it. This will increase your 9L0-510 PDF 1Z1-522 Exam 310-232 Exam 000-277 Study Guide HP0-767 IT Exam 1Z1-884 Exam C_SASEAA157 Exam 000-977 Exam PDF HP0-M43 Certification HCISPP Study Guide 642-291 Dumps HP0-Y30 IT Exam 000-399 Certification TB0-120 IT Exam A2010-023 920-236 IT Exam 000-011 You can go for test engine assessment sessions generating the environment similar to exam. 00M-647 Certification M6040-408 BCP-223 Certification 000-M229 1Z0-271 PDF 1Z1-542 Certification 1Z1-061 Exam PDF P4110-001 Certification 98-369 PDF ECDL-ICDL-EXAM Exam PDF 642-416 VCE 920-352 EK0-001 PDF 1Z1-218 Exam 920-118 000-N31 IT Exam HC-621-ENU Exam PDF EE0-201 Dumps HP0-210 VCE 650-298 IT Exam 000-047 Exam 1Z1-451 IT Exam 000-851 P2180-023 Exam CIOWTSB VCE Check out the diverse feature of our products through exam demos and step towards actual purchase. excellence of our products. packages are developed with an emphasis to sustain validity and quality. 922-101 Exam PDF CSDA Exam ST0-083 C6030-041 VCE 310-091 PDF FI0-460 Study Guide HP2-K21 IT Exam LOT-441 PDF HP0-M40 Exam A2040-988 Exam 050-683 Exam PDF 000-173 Study Guide A2090-919 P2170-037 IT Exam 70-469 Exam 642-052 Dumps 310-812 IT Exam utilities and use them accordingly. This is the base on which you will actually build. If you are an experienced candidate it