Many in our APS type 1 community are affected by hypoparathyroidism. On March 5th, Julia Richardson joined about a dozen other patients, to share the impact of hypoparathyroidism and treatment at an Externally Led Patient Focused Drug Development (EL-PFDD) meeting. The goal of the meeting was to share the effects of the disease and the…
Read MoreThe APS Type 1 Foundation supports education, awareness, and fundraising for critical research.
Join The APS Type 1 (APECED) Registry
NEW! Please help us grow the registry with our new brochure. Share it with your care team.
The APS Type 1 (APECED) Registry is a secure database that provides a way to collect information from many different people with APS Type 1 and to update information over time as conditions and experiences change. The surveys are intended to gather information about many different aspects of APS Type 1, including details about diagnosis, prognosis, treatments, which disorders the patient has and when they were acquired, medications, hospitalizations and quality of life. Help us drive research! Register Now ›
Upcoming Events
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Walk 1000 miles for APS Type 1 – Spring 2024
The APS Type 1 Foundation is excited to announce the return of “Walk 1000 miles for APS Type 1”, our virtual race to raise funds and…
Monday, May 13, 2024 - Sunday, May 19, 2024 Everywhere/Online -
APS1 and Immune Tolerance: From Basic Biology to Clinical Translation
Organizing SocietiesAPS Type 1 FoundationClinical Immunology Society (CIS)NIAID Session Chairs:Mihalis Lionakis, MDNational Institute of Allergy and Infectious Diseases Mark Anderson, MD, PhDUniversity of California, San…
Tuesday, June 18, 2024 1:30 pm - 5:00 pm San Francisco Marriott Marquis
780 Mission St
San Francisco, CA 94103
How We Help
We connect patients, families and doctors, support the work of scientists, and drive research forward.
Stay Informed
The APS Type 1 Foundation brings the most up to date research to our community. Join our symposia, and sign-up for our newsletter and registry to keep abreast of the latest developments in research and management of this complex disease.
“The information we received at the 2019 Symposium was invaluable—as are the new friends we made.”
— Jade Smith, pictured here with Allyson & Geoffrey
Latest News
A message from our President, Todd Talarico
Welcome to 2024, we hope that you and your family have kicked off the new year with good health and happiness! Our spring newsletter will highlight some of the amazing activities of our community already this year and provide you with a look at what we are focused on for 2024. Make sure you read about…
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