We are grateful to all the members of APS Type 1 Foundation for their continuous support and advice. We thank APS Type 1 Foundation’s families for their hard work to raise funds to support APS-1 research. Rachid Tazi-Ahnini and Mimoun Azzouz In 2019, the Foundation’s research grant was awarded to Rachid Tazi-Ahnini and Mimoun Azzouz…
Read MoreThe APS Type 1 Foundation supports education, awareness, and fundraising for critical research.
Join The APS Type 1 (APECED) Registry
NEW! Please help us grow the registry with our new brochure. Share it with your care team.
The APS Type 1 (APECED) Registry is a secure database that provides a way to collect information from many different people with APS Type 1 and to update information over time as conditions and experiences change. The surveys are intended to gather information about many different aspects of APS Type 1, including details about diagnosis, prognosis, treatments, which disorders the patient has and when they were acquired, medications, hospitalizations and quality of life. Help us drive research! Register Now ›
Upcoming Events
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Walk 1000 miles for APS Type 1 – Spring 2024
The APS Type 1 Foundation is excited to announce the return of “Walk 1000 miles for APS Type 1”, our virtual race to raise funds and…
Monday, May 13, 2024 - Sunday, May 19, 2024 Everywhere/Online -
APS1 and Immune Tolerance: From Basic Biology to Clinical Translation
Organizing SocietiesAPS Type 1 FoundationClinical Immunology Society (CIS)NIAID Session Chairs:Mihalis Lionakis, MDNational Institute of Allergy and Infectious Diseases Mark Anderson, MD, PhDUniversity of California, San…
Tuesday, June 18, 2024 1:30 pm - 5:00 pm San Francisco Marriott Marquis
780 Mission St
San Francisco, CA 94103
How We Help
We connect patients, families and doctors, support the work of scientists, and drive research forward.
Stay Informed
The APS Type 1 Foundation brings the most up to date research to our community. Join our symposia, and sign-up for our newsletter and registry to keep abreast of the latest developments in research and management of this complex disease.
“The information we received at the 2019 Symposium was invaluable—as are the new friends we made.”
— Jade Smith, pictured here with Allyson & Geoffrey
Latest News
Forever in Blue Jean for Genes was a Super Diamond Success
Dear Friends, Family and all APS Type 1 Supporters, The words “Thank You” do not feel sufficient to express our sincere gratitude for your generous support of the APS Type 1 Foundation at “Forever in Blue Jeans for Genes” last month. Looking back on the event, we were overwhelmed to feel all the love in…
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