2nd International Symposium on APS Type 1: Registration Now Open

The APS Type 1 Foundation, Inc. is pleased to invite you to the 2nd International Symposium on APS Type 1 at Stony Brook University, July 13-15, 2017. This 2-day conference will bring together patients, family members, caregivers, clinicians and researchers from around the globe who are dedicated to improving the lives of people with Autoimmune Polyglandular Syndrome Type 1 (also known as Autoimmune Polyendocrinopathy Syndrome Type 1 or APECED). Building on the great success of the 1st International Symposium in Autoimmune Polyendocrinopathy Syndrome Type 1 (APECED) hosted by SickKids in Toronto, Canada in 2015, our hope and goal is that this symposium will continue to increase awareness and advance research of APS Type 1, enhance communication among and within the patient, clinician and research communities, and act as a catalyst for future research, diagnosis and treatment of the disease.

We’ve developed an exciting and diverse program that is designed to interest both the patient and research communities. We are grateful for the support and participation of many key opinion leaders on the subject of APS Type 1. While the agenda continues to be fine-tuned, program highlights include: APECED in 2017: Current Developments and Future Prospects, featuring Dr. Mihalis Lionakis, National Institutes of Health; Responding to Emergencies: Adrenal Insufficiency and Low Calcium, featuring Dr. Olle Kampe, Karolinska Institutet, Stockholm, Sweden, and Dr. Cheri Deal, University of Montreal, Montreal, Canada; Current Thymus Research Panel, featuring Dr. Louise Markert, Duke University, Dr. Audrey Parent, University of California, San Francisco, and Dr. Kai Krohn, Helsinki University Hospital Research Institute, Helsinki, Finland.

The 2nd International Symposium on APS Type 1 will be held on Thursday, July 13th, 2017 through Saturday, July 15th, 2017 at Stony Brook University, Stony Brook, New York.

A welcome reception kicks off the conference on Thursday, July 13th at 6:00 PM, and the last lunch session will conclude by 2:00 PM on Saturday, July 15th. Breakfast and lunch will be served on Friday and Saturday.

With the support of the APS Type 1 Foundation, there is no fee to attend the symposium. In addition, we are pleased to offer a limited amount of financial assistance to family members who are traveling to the symposium. Patients and family members will find an area for requesting financial assistance on the registration form. The deadline for requesting assistance is February 28, 2017, and the Foundation’s organizing committee will contact you to let you know if funds are available by March 15, 2017 .

Because we recognize that for some of you it will not be possible to come to New York for the symposium, we are making arrangements to video tape the program. These videos will be posted on the Foundation’s website following the symposium.

If you can, please bring your children. We have a lot to learn from our children. We will provide kids’ activities in the same building as the conference. You will all have to take care of your child’s medical needs, but we will plan to keep them busy and make sure they have fun.

Register at the following link: http://dklecher.wixsite.com/aps1symposium

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